The Association of Peyronie's Disease Advocates wishes to welcome you to our web site. It is our sincerest intention to help you in your search for information concerning this disease. We believe that all men are at risk. There are many more afflicted than research implies and they suffer in silence. We believe all men and their families deserve a better future than the one they now face. The Physicians who treat and research on their behalf also need, and deserve our support! Association of Peyronie's Disease Advocates hopes that this site can become your first resource for information regarding the Disease, and secondly a place to come and meet others who suffer from its Physical and Psychological effects. In joining together and speaking out as one voice we can effect great change in overcoming this disease. We hope that you will join us in our efforts in finding effective treatments and an eventual cure for this devastating disease.

List of Doctors

How to Choose a Physician for Peyronie’s Disease
Dr. John P. Mulhall M.D.

It is always surprising to me how little attention patients pay to choosing a physician for a medical condition. Often patients go to a physician they saw on a TV advertisement, on an internet advertisement or that they found in the yellow pages. Most people would spend more time figuring out the right plumber to fix their leaky faucet than they do choosing a physician for their Peyronie's disease. The more uncommon a condition, the more complex it is, then the greater the amount of homework that should be done on the qualifications of the physician that you will choose.

In general, the specialty that evaluates and treats Peyronie's disease is UROLOGY. Urologists are physicians that train in the medical and surgical treatment of diseases of the kidney, bladder, prostate, testis and penis (among other organs). However, Peyronie's disease is not a particularly common condition and some urologists see very little of this problem in training. There are many training programs that do not have a urologic sub-specialist with expertise in Peyronie's disease and thus the level of training at some centers makes it difficult for an otherwise excellent urologist to be facile in the management of Peyronie's disease. This is most important when it comes to choosing a surgeon for reconstruction for penile deformity. For many urologists the only surgery they perform for a patient with Peyronie's disease is a penile implant. Many have no experience in doing other surgical procedures that do not require placement of an implant. In this situation you should consider seeking another opinion.

It is impossible to give you all the information necessary to make your decision in choosing a physician with expertise in this area, but the "expert and associate list" on this site is a start and some pointers below may aid you in making your decision. When in doubt seek a second opinion, after all, it is your PENIS, you only have one and it cannot be replaced! Before you even see the physician, when setting up an appointment simply asking the physician's assistant how many patients with Peyronie's disease are seen by the physician is a good start. If that number is one per month then you may need to consider seeing another physician.

A Peyronie's disease interview cannot be conducted in 5-10 minutes so if this is all the time you are given you may need to consider a second opinion. Many experts routinely spend 30-45 minutes with Peyronie's disease patients. The Peyronie's disease discussion should cover the cause, the natural history of the condition, medical treatment options and for patients with advanced disease not responsive to medical treatment surgical options. The physician should be comfortable answering your questions and should have some basic figures available for the success with various treatments. If the doctor's primary recommendation is do nothing or come back in 6 months then you're better off seeking care elsewhere as this physician has demonstrated their lack of interest and knowledge. Experts have heard this story way too often and the possibility to institute conservative/medical therapy during the acute phase is lost. Clearly not all patients will respond but it is still the right time to initiate some treatment. Do not be afraid to see a physician more than once if all of your questions have not been answered or have not been answered to your satisfaction. Any physician who begrudges you this time is most probably not a match for you and may not have a particular interest in Peyronie's disease.

When choosing a surgeon, be extremely careful and define the level of training of the physician in this complex surgery. In general, expertise is gained and maintained by the regular performance of any operation, the more complex the procedure, the greater the number that should be performed to achieve an expert level. Have a full discussion about the pros and cons, risks and benefits of a particular procedure. Ask the surgeon what to realistically expect with regard to penile length, penile sensation and degree of deformity after the procedure.

Western Region

California, Oregon, Washington

Mountain Region

Arizona, Colorado, Idaho, Montana, Nevada, Utah, Wyoming

Midwestern Region

N. Dakota, S. Dakota, Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, Ohio, Wisconsin

Southern Region

Louisiana, New Mexico, Oklahoma, Texas

Northeastern Region

Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont

Eastern Region

Delaware, New Jersey, New York, Pennsylvania, Washington D.C., Maryland, Rhode Island

Southeastern Region
- Alabama, Arkansas, N. Carolina, S. Carolina, Florida, Georgia, Kentucky, Mississippi, Tennesse e, Virginia, W. Virginia

No Physicians
(Alaska, Hawaii)

Sorry we do not have any physicians for this region.

Western Region
(California, Oregon, Washington)

Dr. Gary Alter
416 N. Bedford, Ste 400
Beverly Hills, CA 90210-4314
Tel: (310)-275-5566

Dr. Martin K. Gelbard
Urology Associates Medical Group
2601 West Alameda Avenue Suite 416
Burbank, California 91505
Tel: (818) 843-1700
Peyronies.org

Dr. Tom Lue
Department of Urology, UCSF
400 Parnassus Avenue, A633
San Francisco, CA 94143-0738
Tel: (415) 476-1611
Fax: (415) 476-8849

Dr. Ira Sharlip
Pan Pacific Urological/Surgical Associates
2100 Webster Street #222
San Francisco, CA 04115-2376
Tel:( 415) 202-0250

Dr. Hunter Buchanan Wessells
Harborview Medical Center
Department of Urology
325 Ninth Ave Box 359868
Seattle, WA 98104
Tel: (206) 731-3205

Mountain Region
(Arizona, Colorado, Idaho, Montana, Nevada, Utah, Wyoming)

Dr. Joel Kaufman
Aurora Urology, PC
400 W. Potomac St., Ste 250
Aurora, CO 80012-4538
Tel: (303) 695-6106

Dr. Bruce Robertson, M.D.
935 Highland Blvd, Ste: 2160
Bozeman, MT 59715
Tel: (406) 586-2516

Dr. William O. Brant, M.D.
Urology
Vail Valley Medical Center
Shaw Regional Cancer Center
Tel: (970) 479-7800

Midwestern Region
( N. Dakota, S. Dakota, Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, Ohio, Wisconsin)

Dr. Laurence Levine
Urology Specialists, S.C.
1725 W. Harrison St., suite 352
Chicago, IL 60612
Tel: (312) 563-5000

Dr. Kevin McVary
Northwestern Univ. Med. School
Dept. of Urology
Tarry Bldg. 11-715
301 E. Chicago Ave.
Chicago, IL 60611
Tel: (312) 908-9600

Dr. John Mulcahy
Indiana Cancer Pavilion
535 N. Barnhill Dr., Ste 420
Indianapolis, IN 46202-5289
Tel: (317) 278-7560

Dr. Jon Lee Pryor
University of MN Hospital / Dept. of Urology
420 Delaware St., SE, MNC 394
Minneapolis, MN 55455
Tel: (612) 625-0662

Dr. Allen D. Seftel
Case Western Res. University
Urology Dept.
11100 Euclid Ave.
Cleveland OH 44106-5046
Tel: (216) 844-7632

Southern Region
( Louisiana, New Mexico, Oklahoma, Texas)

Dr. Wayne Hellstrom
Tulane University School of Medicine
Dept of Urology Box SL 42
1430 Tulane Ave.
New Orleans, LA 70112-2699
Tel: (504) 587-7308

Northeastern Region
(Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont)

Dr. Irwin Goldstein
Editor-in-Chief
The Journal of Sexual Medicine
85 Old Farm Road
Milton, MA 02186
Tel: ( 617) 698-8928

Dr. Ricardo Manuel Munarriz
BUSM/Dept. of Urology
720 Harrison Ave, Ste. 606
Boston, MA 02118
Tel: (617) 638-8485

Dr. Michael Philip O’Leary
Brigham & Women’s Hospital
45 Francis St. AMB11-3
Boston, MA 02115-6105
Tel: (617) 732-6325

Dr. Abraham Morgentaler
Men’s Health Boston
One Brookline Place, Ste. 624
Brookline, MA 02445
Tel: (617) 277-5000

Eastern Region
Delaware, New Jersey, New York, Pennsylvania, Washington D.C., Maryland, Rhode Island)

Dr. Hossein Sadeghi-Nejad, M.D., F.A.C.S.
UMDNJ New Jersey Medical School
Hackensack University Medical Center
20 Prospect Avenue
Hackensack, NJ 07601
Tel: (201) 342-7977
www.hsadeghi.com

Dr. John P. Mulhall
New York Presbyterian Hospital
525 East 68th St. Box 94
New York, NY 10021
Tel: (212)746-5653

Dr. Ridwan Shabsigh
Columbia Presbyterian Medical Center
Dept. of Urology / Atchley Pavillion
161 Fort Washington Ave. 11th Floor
New York, NY 10032-4101
Tel: (212) 305-0123

Dr. Arthur Burnett
Johns Hopkins Hospital
Dept. of Urology, Marburg 407
600 N. Wolfe St.
Baltimore, MD 21297-2411
Tel: (410) 614-3986

Southeastern Region
Alabama, Arkansas, N. Carolina, S. Carolina, Florida, Georgia, Kentucky, Mississippi, Tennessee, Virginia, W. Virginia)

Dr. Culley Carson
UNC-Chapel Hill
Div. of Urology
2140 Bionformatics Bldg CB-7235
Chapel Hill, NC 27599-7235
Tel: (919) 966-2571

Dr. Gregory Broderick
Mayo Clinic Jacksonville
Dept. of Urology
4500 San Pablo Riad
Jacksonville, FL. 32224
Tel: (904) 953-7330

Dr. Lawrence Hakim
Cleveland Clinic Florida
Dept. of Urology
2950 Cleveland Clinic Blvd.
Weston, FL 33331-3609
Tel: (954) 659-5188

Dr. Gerald Jordan
Urology of Virginia, PC
400 W. Brambleton Ave #100
Norfolk, VA 23510-1115
Tel: (757) 457-5125

Dr. Edward Kim
University Urology Pc
University of TN Medical Center @ Knoxville
1924 Alcoa Hwy., Box U-11
Knoxville, TN 37920-1511
Tel: (865) 544-9254

List of Doctors

How to Choose a Physician for Peyronie’s Disease Dr. John P. Mulhall M.D.

No Physicians (Alaska, Hawaii)

Western Region (California, Oregon, Washington)

Mountain Region (Arizona, Colorado, Idaho, Montana, Nevada, Utah, Wyoming)

Midwestern Region ( N. Dakota, S. Dakota, Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, Ohio, Wisconsin)

Southern Region ( Louisiana, New Mexico, Oklahoma, Texas)

Northeastern Region (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont)

Eastern Region Delaware, New Jersey, New York, Pennsylvania, Washington D.C., Maryland, Rhode Island)

Southeastern Region Alabama, Arkansas, N. Carolina, S. Carolina, Florida, Georgia, Kentucky, Mississippi, Tennessee, Virginia, W. Virginia)